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| Name |
Kevin Frankeberger, Ph.D., CFRE |
| City & State |
Shelton (near Seattle), WA |
| Company Name |
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| Contact Info |
k_frankeberger@yahoo.com |
| Disability |
Blind, chronic pain |
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| Company Description |
| With representation by Damon Brooks & Associates, Dr. Frankeberger
both designs and delivers disability awareness seminars and programs
for clients throughout the U.S. and beyond. Many of his clients have
been transit agencies as well as transit trade organizations. Kevin
recently returned from China having traveled with a large contingent
of members of various U.S. based Chambers of Commerce to learn more
about “awareness” in that fast developing country in anticipation
of the 2008 Beijing Olympics.
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| Dr. Frankeberger also works with major corporate clients
who serve the traveling public. Although currently between guide dogs
(shown is recently retired Chessy who is enjoying his life of leisure
at Kevin and PCA/spouse Becky’s home), Kevin is a frequent traveler
who has had first-hand experience with the negatives people with disabilities
that travel are expected to endure. He has turned those negatives
into educational “opportunities” as he believes sometimes it makes
more sense to educate then to litigate! |
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| How Did you Get Started? |
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What happens if you made your lemonade out of the lemons
given but years later the pitcher breaks?
If you are like Kevin Frankeberger, you pick up the pitcher and refabricate
it with a new batch of juice! Many have made the proverbial “lemonade
out of lemons’ but to do it twice in one lifetime is a different kind
of feat.
Born with congenital Nystagmus, Kevin prospered with the limited sight
he had. He performed perfectly through graduate school, spent years
as a development officer for the Boy Scout of America, went on to
be the assistant vice president at the oldest historically Black college
in America and then had his own fund development firm that helped
to build battered women’s shelters, children’s hospitals, a private
Jewish Academy and so on. Next he was to run for Congress.
That never happened though. A car accident in 1995 left him in chronic
pain along with his blindness. He could no longer work and support
his family and those of his employees. The family finances went to
pay medical bills. The home was lost. His marriage ended. Life itself
almost ended at his own hands.
Five years later, Kevin stopped merely existing and began living again.
Teamed with his first guide dog, the blindness issue almost went away
in terms of getting around safely. He immersed himself into public
transportation options. Kevin began speaking about his experiences,
the impact of the Americans with Disabilities Act, the importance
of “working from the heart” and, the inspiration he got from his teenaged
children to find help for his chronic pain and to live again!
Kevin’s story is one of strength and courage, twice. At times humorous,
at times emotional but always motivating, this story of a man who
is blind who then had to overcome yet another (and hidden) disability
to live again proves that the human spirit is strong enough to make
as much lemonade as life presents lemons. As Kevin says, “Sometimes,
the pitcher just has to be redesigned a tad.”
Dr. Frankeberger was dubbed a “national transit success story” by
Easter Seals Project ACTION and has been featured in many national
publications. |
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| How does your disability affect or impact your
business? |
Although Kevin’s blindness seems most obvious as his
disability, it is his chronic pain that mostly affects or impacts
his business. As he laments, many in the disability “knowledge group”
as he calls it, don’t get it either and that’s a source of frustration.
The “it” is that he must travel and rely on a PCA (Personal Care Attendant)
when he travels or presents. And, she is not there to help at all
with his orientation or mobility, Becky is there to assist with the
chronic pain issue. In fact, Becky is blind as well. And, she just
happens to now be his wife!
Dr. Frankeberger says that clients are at least relieved to know that
they don’t have to pay for two hotel rooms but at times, they want
to question the extra airplane ticket or extra meals and so forth.
To have to explain what his PCA does for him is of course an illegal
ask but even more, an immoral one as well in his opinion. But, until
he tells his tale and brings forth what the Americans with Disabilities
Act (ADA) was designed to bring to bear, his clients just don’t have
a clue. At the onset, it seems that this speaker or presenter is simply
bringing his wife along for a paid holiday, he says.
Another impact upon the business that his hidden disability has is
that Kevin must travel a day ahead of any seminar or presentation
so that he can physically try to recover from the plane ride and this
and that. Also, he must stay a night after any such presentation to
again, regroup and try to bring his pain levels back to a manageable
level. Dr. Frankeberger reports that sometimes clients “get it” and
sometimes they don’t meaning, extra hotel nights and meals associated
(times two with his PCA) are sometimes out of pocket. As he says,
“I’ve been fortunate in my life to stay in way too many nice hotels
and have eaten at again, way too many nice restaurants. If only I
could, I’d leave at the last minute and come home at the first opportunity
to sleep in my own bed and cook my own food. But, I can’t.” |
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| Your Best Advice |
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Network, network and then, network some more! And, do
it out of your comfort zone! Most readers probably are on one list
serve or another with people who have the same disability or, have
a guide dog from the same school or use a wheelchair made by the same
manufacturer and so on. That won’t propel whatever business but, of
course it will propel friendships and bring you a place to cry but,
it won’t make you any bucks.
Get into your community. Serve on Boards and get to know the shakers
and movers around. Be a Rotarian or a Lion or a Sertomen…whatever
but get out there and network. And, once on that Board or a member
of that civic club, be active and involved. Show yourself and not
your disability by that active involvement. Those around you will
make you successful if they feel you believe in yourself.
And, say “thank you” in 24 hours or less when a thanks is in order.
In a similar way, respond to people who you think have some way to
positively help you in 24 hours or less.
Thanks now to all who might have read this piece about me. I’m humbled
to have been asked to share my story. I can always use more business!
Pass my name along. <grin> Remember, network! |
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